
Organisation for epidermolysis bullosa patients
Mission
Epidermolysis bullosa (EB) is a rare chronic and hereditary skin disorder that manifests itself from birth. In people who have EB, the different layers of the skin do no properly attach. As a result, painful blisters form spontaneously or due to friction, pressure and heat all over the body, sometimes also on the mucosa. This can have far reaching consequences, like damage to the eyes, problems with growth, malformation of the esophagus and the hands and feet, as well as problems eating, and can lead to disability and a lot of pain. The disease puts heavy physical, financial and emotional pressure on the families.
Debra vzw wants to offer practical, media land psychosocial support. Its goals are advocacy (affordable and specialized care), information, contact with other patients and training of specialized nurses.
Debra only works with volunteers and the assistance they offer is free of charge.
This organisation communicates in Dutch and French. Please consult the information in Dutch or French to learn more.
Board of directors | Ingrid Jageneau (coordinator), Daniel Bauwens, Nirmala Huart, Sylvie De Maegd, Annick Vangenechten, Dorien De Man, Bernard Vandenheule | ||
Daily management | Ingrid Jageneau | ||
Founded in | 1999 | ||
Number of full-time equivalent employees(FTE) | 0,5 | ||
Number of volunteers | 6 | ||
Account number(s) | IBAN BE04 9793 2866 7731 - BIC ARSPBE22 - please mention 'via donorinfo.be' | ||
Fiscal certificate | Will be issued for donations reaching a total amount of 40 € during the calendar year | ||
Newsletter | Debra Belgium e-newsflash, 4 times/year |
Costs 2019
Projects, activities excl. personnel costs60/61 | 39.203 € | ||
Fundraising costs excl. personnel costs60/61 | 1.817 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 8.081 € | ||
Overheads excl. personnel costs61 | 5.174 € | ||
Personnel and social security costs62 | 20.832 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 0 € | ||
Financial costs65 | 232 € | ||
Exceptional costs66 | 0 € | ||
Others | 232 € | ||
Total costs 2019 | 75.339 € |
Proceeds 2019
Private donations and corporate patronage73 | 60.140 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 585 € | ||
Proceeds from activities, sponsorships or events70 | 17.224 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 0 € | ||
Financial proceeds75 | 121 € | ||
Exceptional proceeds76 | 0 € | ||
Others | 706 € | ||
Total proceeds 2019 | 78.070 € |
Assets 2019
Fixed assets20/28 | 0 € | |
Current assets29/58 | 154.538 € | |
Total assets 2019 | 154.538 € |
Liabilities 2019
Capital and reserves10/15 | 154.538 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2019 | 154.538 € |
Costs 2018
Projects, activities excl. personnel costs60/61 | 28.620 € | ||
Fundraising costs excl. personnel costs60/61 | 880 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 1.772 € | ||
Overheads excl. personnel costs61 | 4.043 € | ||
Personnel and social security costs62 | 21.907 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 0 € | ||
Financial costs65 | 225 € | ||
Exceptional costs66 | 0 € | ||
Others | 225 € | ||
Total costs 2018 | 57.447 € |
Proceeds 2018
Private donations and corporate patronage73 | 47.260 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 570 € | ||
Proceeds from activities, sponsorships or events70 | 21.309 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 0 € | ||
Financial proceeds75 | 135 € | ||
Exceptional proceeds76 | 0 € | ||
Others | 705 € | ||
Total proceeds 2018 | 69.274 € |
Assets 2018
Fixed assets20/28 | 0 € | |
Current assets29/58 | 151.807 € | |
Total assets 2018 | 151.807 € |
Liabilities 2018
Capital and reserves10/15 | 151.807 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2018 | 151.807 € |
Costs 2017
Projects, activities excl. personnel costs60/61 | 41.921 € | ||
Fundraising costs excl. personnel costs60/61 | 899 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 7.476 € | ||
Overheads excl. personnel costs61 | 3.119 € | ||
Personnel and social security costs62 | 22.201 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 0 € | ||
Financial costs65 | 765 € | ||
Exceptional costs66 | 0 € | ||
Others | 765 € | ||
Total costs 2017 | 76.381 € |
Proceeds 2017
Private donations and corporate patronage73 | 51.225 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 585 € | ||
Proceeds from activities, sponsorships or events70 | 19.298 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 0 € | ||
Financial proceeds75 | 154 € | ||
Exceptional proceeds76 | 0 € | ||
Others | 739 € | ||
Total proceeds 2017 | 71.262 € |
Assets 2017
Fixed assets20/28 | 0 € | |
Current assets29/58 | 139.981 € | |
Total assets 2017 | 139.981 € |
Liabilities 2017
Capital and reserves10/15 | 139.981 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2017 | 139.981 € |
Costs 2016
Projects, activities excl. personnel costs60/61 | 37.210 € | ||
Fundraising costs excl. personnel costs60/61 | 4.967 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 5.667 € | ||
Overheads excl. personnel costs61 | 3.727 € | ||
Personnel and social security costs62 | 20.758 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 0 € | ||
Financial costs65 | 516 € | ||
Exceptional costs66 | 0 € | ||
Others | 516 € | ||
Total costs 2016 | 72.845 € |
Proceeds 2016
Private donations and corporate patronage73 | 14.561 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 285 € | ||
Proceeds from activities, sponsorships or events70 | 0 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 100 € | ||
Financial proceeds75 | 298 € | ||
Exceptional proceeds76 | 0 € | ||
Others | 683 € | ||
Total proceeds 2016 | 15.245 € |
Assets 2016
Fixed assets20/28 | 0 € | |
Current assets29/58 | 145.101 € | |
Total assets 2016 | 145.101 € |
Liabilities 2016
Capital and reserves10/15 | 145.101 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2016 | 145.101 € |
Costs 2015
Projects, activities excl. personnel costs60/61 | 32.555 € | ||
Fundraising costs excl. personnel costs60/61 | 4.633 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 4.106 € | ||
Overheads excl. personnel costs61 | 6.544 € | ||
Personnel and social security costs62 | 18.406 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 0 € | ||
Financial costs65 | 627 € | ||
Exceptional costs66 | 0 € | ||
Others | 627 € | ||
Total costs 2015 | 66.871 € |
Proceeds 2015
Private donations and corporate patronage73 | 90.229 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 300 € | ||
Proceeds from activities, sponsorships or events70 | 2.500 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 1.265 € | ||
Financial proceeds75 | 770 € | ||
Exceptional proceeds76 | 14.353 € | ||
Others | 16.688 € | ||
Total proceeds 2015 | 109.417 € |
Assets 2015
Fixed assets20/28 | 0 € | |
Current assets29/58 | 202.701 € | |
Total assets 2015 | 202.701 € |
Liabilities 2015
Capital and reserves10/15 | 202.701 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2015 | 202.701 € |
Costs 2014
Projects, activities excl. personnel costs60/61 | 50.877 € | ||
Fundraising costs excl. personnel costs60/61 | 1.134 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 7.725 € | ||
Overheads excl. personnel costs61 | 4.916 € | ||
Personnel and social security costs62 | 4.843 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 0 € | ||
Financial costs65 | 691 € | ||
Exceptional costs66 | 0 € | ||
Others | 691 € | ||
Total costs 2014 | 70.186 € |
Proceeds 2014
Private donations and corporate patronage73 | 38.446 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 480 € | ||
Proceeds from activities, sponsorships or events70 | 23.903 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 0 € | ||
Financial proceeds75 | 1.425 € | ||
Exceptional proceeds76 | 0 € | ||
Others | 1.905 € | ||
Total proceeds 2014 | 64.254 € |
Assets 2014
Fixed assets20/28 | 0 € | |
Current assets29/58 | 160.157 € | |
Total assets 2014 | 160.157 € |
Liabilities 2014
Capital and reserves10/15 | 160.157 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2014 | 160.157 € |
Costs 2013
Projects, activities excl. personnel costs60/61 | 40.666 € | ||
Fundraising costs excl. personnel costs60/61 | 814 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 42.304 € | ||
Overheads excl. personnel costs61 | 2.658 € | ||
Personnel and social security costs62 | 0 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 0 € | ||
Financial costs65 | 671 € | ||
Exceptional costs66 | 0 € | ||
Others | 671 € | ||
Total costs 2013 | 87.113 € |
Proceeds 2013
Private donations and corporate patronage73 | 25.501 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 390 € | ||
Proceeds from activities, sponsorships or events70 | 9.833 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 0 € | ||
Financial proceeds75 | 1.318 € | ||
Exceptional proceeds76 | 0 € | ||
Others | 1.708 € | ||
Total proceeds 2013 | 37.042 € |
Assets 2013
Fixed assets20/28 | 0 € | |
Current assets29/58 | 166.089 € | |
Total assets 2013 | 166.089 € |
Liabilities 2013
Capital and reserves10/15 | 166.089 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2013 | 166.089 € |
Costs 2012
Projects, activities excl. personnel costs60/61 | 24.415 € | ||
Fundraising costs excl. personnel costs60/61 | 4.284 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 4.101 € | ||
Overheads excl. personnel costs61 | 8.893 € | ||
Personnel and social security costs62 | 0 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 0 € | ||
Financial costs65 | 947 € | ||
Exceptional costs66 | 0 € | ||
Others | 947 € | ||
Total costs 2012 | 42.639 € |
Proceeds 2012
Private donations and corporate patronage73 | 96.617 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 555 € | ||
Proceeds from activities, sponsorships or events70 | 12.457 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 131 € | ||
Financial proceeds75 | 2.964 € | ||
Exceptional proceeds76 | 0 € | ||
Others | 3.650 € | ||
Total proceeds 2012 | 112.724 € |
Assets 2012
Fixed assets20/28 | 0 € | |
Current assets29/58 | 216.161 € | |
Total assets 2012 | 216.161 € |
Liabilities 2012
Capital and reserves10/15 | 216.161 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2012 | 216.161 € |
Costs 2011
Projects, activities excl. personnel costs60/61 | 22.581 € | ||
Fundraising costs excl. personnel costs60/61 | 3.008 € | ||
Information, awareness raising and education excl. personnel costs60/61 | 3.335 € | ||
Overheads excl. personnel costs61 | 9.641 € | ||
Personnel and social security costs62 | 0 € | ||
Depreciations and amortizations630/634 | 0 € | ||
Provisions for losses and expenses635/638 | 0 € | ||
Other operating expenses, taxes64/67 | 189 € | ||
Financial costs65 | 226 € | ||
Exceptional costs66 | 0 € | ||
Others | 414 € | ||
Total costs 2011 | 38.980 € |
Proceeds 2011
Private donations and corporate patronage73 | 37.935 € | ||
Legacies73 | 0 € | ||
Membership fees73 | 600 € | ||
Proceeds from activities, sponsorships or events70 | 22.147 € | ||
Proceeds from services to beneficiaries70 | 0 € | ||
Public subsidies73 | 0 € | ||
Tombola70 | 0 € | ||
Other operating proceeds74 | 867 € | ||
Financial proceeds75 | 1.260 € | ||
Exceptional proceeds76 | 0 € | ||
Others | 2.728 € | ||
Total proceeds 2011 | 62.810 € |
Assets 2011
Fixed assets20/28 | 0 € | |
Current assets29/58 | 146.076 € | |
Total assets 2011 | 146.076 € |
Liabilities 2011
Capital and reserves10/15 | 146.076 € | |
Creditors and provisions16/49 | 0 € | |
Total liabilities 2011 | 146.076 € |